E.S.PKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria)
European Society for Phenylketonuria calls for minimum standard of care across Europe
Alter, Belgium (ots) - First ever pan-European perspective on optimal care identifies key challenges in this rare genetic disease The first ever pan-European patient/carer perspective on optimal care of the rare genetic disorder phenylketonuria (PKU) has been published in the Orphanet Journal of Rare Diseases. This paper, supported by the European Society for ...
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